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Trailblazing Madisen leads the way in new clinical trial offering hope for children with neurofibromatosis 15 April 2021 A six year old Perth girl, Madisen Sotirovska, has become the first patient in Australia and New Zealand to be enrolled in a new clinical trial offering hope to children diagnosed with neurofibromatosis. Perth Children’s Hospital (PCH) Oncology Department is one of several hospitals across Australia and NZ taking part in the TiNT MEK Inhibitor clinical trial that aims to reduce tumour growth caused by neurofibromatosis type 1 (NF1). Neurofibromatosis is a genetic disorder that causes several medical conditions including tumour growth, both benign and cancerous, along the nerves in any part of the body. Madisen’s mum, Angela said neurofibromatosis was a difficult condition to live with because of the uncertainly around when tumours might grow and how they might impact on her daughter. “Madisen currently has tumours growing on her thigh and one on the joints outside o... -
Guidelines signal a new era of care for children with head injuries 13 April 2021 West Australian children, families and emergency department staff have played an important role in the development of Australia and New Zealand’s first set of clinical guidelines to care for children and young people with mild to moderate head injuries. Perth Children’s Hospital (PCH) Emergency Department (ED) staff have worked closely with the Paediatric Research in Emergency Department International Collaborative (PREDICT) network to help develop this definitive guide for emergency department clinicians to diagnose and treat head injuries. The PCH ED guidelines, which cover issues such as patient triage, imaging, transfer, discharge, referrals and follow up, will bring consistency and quality to head injury management across Australia and New Zealand. Emergency physician and Director of Emergency Research, Professor Meredith Borland said PCH ED staff had played a key role i... -
Newborn babies help unlock important insights into gut health 10 February 2021 Lead author and Consultant Neonatologist in the Neonatal Intensive Care Unit (NICU) PCH, Dr Shripada Rao compared the gut bacteria of a group of healthy babies born at King Edward Memorial Hospital to another group of babies with gastrointestinal (GI) surgical conditions who were managed in the NICU at PCH. Comparisons between the two groups were made by analysing stool samples from the babies. The first stool samples were collected soon after birth and the second samples were collected between 10 and 14 days of their life. The study found that during the course of their stay in the NICU, babies with surgical conditions develop more harmful bacteria and lesser amounts of beneficial bacteria in their gut compared to the healthy group of babies. "The findings are significant because they help us understand why these babies often suffer from adverse health following their surgery such as in... -
Three questions with Professor Lakshmi Nagarajan 10 February 2021 Professor Lakshmi Nagarajan, an internationally renowned child neurologist and epileptologist, has been a consultant at (the former) Princess Margaret Hospital and Perth Children’s Hospital (PCH) for more than 20 years. Dr Nagarajan directs the Child and Adolescent Epilepsy Program in Western Australia and is a Clinical Professor at the University of Western Australia’s School of Medicine. Professor Nagarajan has fostered and advanced high quality care for children with neurological disorders across the world through her work in Australia, India, USA and Canada. She is also active in educational programs in Australia and internationally through the International Child Neurology Association (ICNA) and the International League Against Epilepsy (ILAE). She supervises and mentors Paediatric and Child Neurology trainees in Australia. Prof Nagarajan is on the ILAE task force to dev... -
Five steps for a safe and stress-free lockdown 02 February 2021 Instead of returning to ‘normal routines’ and school this week, families and children throughout WA are today instead adapting to lockdown measures. While we can’t tell what the best and safest choices are for everyone’s unique situation and family, I’ve put together some tips for making the best out of this unanticipated situation – my five steps for a safe and stress-free lockdown. Structure and routine It may seem like your plans have gone out of the window but making what plans you can ahead of time will make the days themselves much less stressful. We need to try and maintain some structure during this period of change and readjustment. The more predictability we can create in this uncertain time, the better it is for kids, by making decisions early, you can really help them be prepared for what’s going to happen. If you wait until the last ...
Last Updated:
22/06/2021